Saturday, July 30, 2016

Admitted Into Eternal Grace--Released From Grief


Praise be to the God and Father of our Lord Jesus Christ! In his great mercy he has given us new birth into a living hope through the resurrection of Jesus Christ from the dead, and into an inheritance that can never perish, spoil or fade. This inheritance is kept in heaven for you, who through faith are shielded by God’s power until the coming of the salvation that is ready to be revealed in the last time. In all this you greatly rejoice, though now for a little while you may have had to suffer grief in all kinds of trials. These have come so that the proven genuineness of your faith—of greater worth than gold, which perishes even though refined by fire—may result in praise, glory and honor when Jesus Christ is revealed. (1 Peter 1:3-7 NIV)

One month ago today, on June 30, 2016, the angel who God sent to earth to be my mom, my friend, my biggest fan, my protector, and defender was set free to return to her eternal home. Alzheimer's was defeated, and her fears were released. She is now admitted into eternal grace.

Mom experienced many physical struggles during her final week, but remembered me until the very end. She had already been in the hospital for three weeks for evaluation. While there, she fell, broke her hip and leg, had surgery, and developed blood clots that preceded her heart attack just hours before she passed.

As Mom struggled on her final morning, one of the nurses on the medical floor told her, "We've talked to Cheryl, and she'll be here soon." The nurse later told me that Mom immediately relaxed, an acknowledgment that Mom knew I was coming and remembered I was someone special in her life. A short while later, she was raced to the Emergency Room, and I raced like Jeff Gordon to meander through the 25 miles to the hospital.

The adage is true that God is never early, never late, and always on time. He got me to the emergency room not a moment early, not a moment late, and just in time. I choose to believe that God told Mom when I arrived at the ER. 

I was quickly escorted to the family conference room to talk with the doctor. During our two-minute conversation, a very intense nurse came into the room twice, needing the doctor's immediate attention regarding my mom. It was during these moments just after I arrived, unbeknownst to me, that Mom's heart had beaten for the very last time. Dr. Jackson asked me for a family directive, just in case, and I pleaded with the doctor, through the torrents of my salty tears, that "she's been through enough, and please, I beg you, please let her go."

Ninety seconds later, I was escorted in the direction of her ER room as nurses and doctors pulled the life-saving lines and tubes from her body. That's when I was first told that her heart had stopped. My feet refused to move just short of the entrance to her room. I told the young male nurse, "Whoa, wait just a second. I've never been with a deceased person before." He gave me a gentle smile and said, "You'll be fine. We'll walk you through it together." Moments later, I was witness to her spirit soaring into the arms of Jesus.

During the last four weeks without my mom, I learned something about grieving. Panic attacks and post-traumatic stress disorder (PTSD) can occur as part of the grief process, particularly for those who have been arduous caregivers and for those who strive to perfectly perform the tasks of being the "CEO" of the estate. Sounds like the job description I diligently fulfilled.

My mom was my best friend for 58 years, and she will always remain my best friend through eternity. Yesterday, the last family members said goodbye. Probate is nearly done. Photos have been tearfully cherished. For moments today, life felt seemingly still.

But, for other moments this week, I found myself experiencing panic attacks for two of the last three mornings (I'm not prone to experiencing them). Took me a couple of days to recognize them as such, and then I did some research. 

When we caregive before death and then become the CEO after death to handle everything on behalf of our loved one (like planning the funeral and writing the obituary, and handling probate, etc.), the busyness "defers" the grief which can then manifest in panic attacks and even PTSD, especially for people like me who hold the winning lottery ticket for perfectionism.

My thoughts about panic attacks or PTSD? Like Dr. Seuss, "I do not like them here or there, I do not like them anywhere."

I extend a special love, mercy, and grace today to others like me who still cry at flashback memories or who stroll through the card section at Hobby Lobby wanting desperately to buy one more card for their loved one, simply because we miss our loved one so very much. This is the most significant and hardest loss of my life, even harder than when my daddy died of Alzheimer's, too.

Despite standing on God's promises and equipped in His spiritual armor, my extreme sadness and pain of not hearing her voice, not being able to pick up the phone to call her, not taking her to church tomorrow, and not seeing her eyes sparkle and her smile penetrate my heart is the hardest journey of my life. I am physically alone right now, and sometimes, crying is the only thing I know how to do.

Please don't judge me, nor dismiss my anguish. It is deep, and it is real. As someone who is grieving, support me in my grief. Let me cry, let me laugh, let me take pause to reflect on the memories of the life partner God gave me in my mom. Let me be held by my angel just a little longer.

 ©2016 Regifted Grace Ministry LLC
Photo by Barry Howell

Saturday, April 23, 2016

Soooooooooo . . . . AM I, LORD?

Though I am surrounded by troubles, you will bring me safely through them. You will clench your fist against my angry enemies! Your power will save me. The Lord will work out his plans for my life—for your loving-kindness, Lord, continues forever. Don’t abandon me—for you made me. (Psalm 138:7-8; TLB)

Tell me, Lord, am I a hypocrite today?

Ten days ago, you asked me to inspire 120 caregivers and share with them the answer to the question, "Where is God in Alzheimer's." But, now I'm shaking my fist toward Heaven and asking, "Where ARE You now." 

As stated in Psalm 138, I have wanted to believe that You bring us safely through our troubles and that Your loving-kindness continues forever. But, like David's words say about You in Psalm 138, I also clench my fist in anger. I grieve, and I'm angry today. And, I'm clenching.

Where were you, Lord, when my friends lost their toddler child to Heaven yesterday? They're grieving, Lord, and I feel helpless to make their pain go away. I think about their losses--first day of kindergarten, first lost tooth, the toothless grin, a driver's license, prom, graduation, a career, and grandchildren. Yes, they have two "other" beautiful children, as some might horrendously suggest. They will always have three children, and now one is missing. Forever. 

So, where were You? 

And, again, am I a hypocrite because I don't know?

At the caregiving conference, I told them to look in the mirror and see Your love reflected in the image--that they are God's love to the ones receiving their care. Your love is reflected through THEM. But, what can I tell my friends? I am weeping, and I don't know what to tell them. 

I grieve losses, too, through the "long goodbye" of Alzheimer's, seeing mom becoming more a child than a mom. I grieve that she may never hold in her hands the book I'm writing about her. I grieve the near total loss of my number one fan. And, I grieve because I can't make it better, just like she did for me when I scraped my knee or broke my toe or sprained my ankles. But, this is nothing like what my friends are facing.

Is Your love being reflected in their tears? Is Your love being reflected in their sleepless nights, or reflected in the mourning they'll share between them all over again on all birthdays and Christmases that will never be the same without their child?

Today, I thought about the baby I never got to hold in my arms in 1987. For ten weeks, I held my baby in my body, until the cramping and bleeding violently stole a part of my future from me. I know I was somehow blessed by seeing that "something" that looked like a little tadpole with two black dots for eyes. The day before, I unknowingly held my baby in a tissue, just assuming it was just something that happened in pregnancy.

But, that's not even close to what my friends are being called to walk through. 

As I ponder further, I sense You whispering the reminder to me of how many times You allowed me to minister to others through my loss, including my friends who knew a week in advance that the full-term child they would bear was anencephalic and would not survive delivery, or my former sister-in-law who lost her child at a women's retreat as I was pregnant with my second son. 

I want to believe that You were there, too, in the emergency room with my friends, grieving with them, and I want to believe that You gently held their child in Your arms upon entrance into Heaven. Jesus said, “Let the little children come to me, and do not hinder them, for the kingdom of Heaven belongs to such as these” (NIV). I know their precious child is with You. You are the "I AM" and You have promised that their child is now with You.

I will believe that Your reflection of love will be radiant when they are called upon to walk this journey with someone else experiencing loss. Perhaps their tragedy will save the lives of other children.

So, Lord, I guess You and I have come full circle tonight. Whatever losses we face here on Earth, You accompany us in our grief. We are brought closer to You as we mourn and pray. And, sometimes we don't see You and that's when you carry us the most.

Carry my friends. Carry the caregivers. Fill us with Your abundant grace so we can see You. Allow us to regift Your grace to those we love and to those who You put in our paths and need it the most.

Thanks, Lord, for not telling me I'm a hypocrite. You know our pain because You felt it on the road to Calvary. Not only did You feel it, but You carried it so that I wouldn't have to, not only to eternity, but also through the most painful parts of my life.

You are with my friends, and their child is with You right now. You are with me, and my mom will be with You soon. 

I'll let You be the one to clench Your fist against my enemies, even when my worst enemy sometimes is grief. You promise to wash our tears away one day.

For today, I'll hold on to that.

Written April 22, 2016; posted April 23, 2016.



©2016 Regifted Grace Ministry LLC

Saturday, April 16, 2016

LAUNCHED: Where is God in Alzheimer's? -- Look in the Mirror

Acts 14:26 (MSG): Finally, they made it to Attalia and caught a ship back to Antioch, where it had all started—launched by God’s grace and now safely home by God’s grace. A good piece of work.


©2016 Regifted Grace Ministry LLC

When our sojourn to Arkansas started, even before the actual move in October 2013, I was drawn to the Arkansas State University campus here in Mountain Home and the beautiful facility called the Vada Scheid Center. Over a year ago, my husband and I attended a benefit at "the Scheid," and I held at bay the nudging in my spirit that hoped one day I would get to speak there.

On Tuesday, April 12, 2016, not only did I live that dream of speaking at the Scheid, but by God's grace the official "launch" was made of the ministry of Regifted Grace. For the first time, I publicly spoke about the manuscript for REGIFTED GRACE: Becoming a Beatitudes Believer in Caregiving.

Nearly 11 months ago, I asked the question, "Where is God in Alzheimer's." So, when Randall Drake (our family elder law attorney since 2009) asked me to speak at the Elder Care Symposium he organized for medical professionals and the community, I wept when he specifically asked me to talk about the book and spiritually encourage caregivers. Through the writing of REGIFTED GRACE, God showed me where I could find Him and how to tell others. Last Tuesday, I began "to tell."



Beatitudes and Fruit of the Spirit: When Jesus spoke to the disciples just before delivering the Sermon on the Mount, He described to the disciples the virtues He needed them to exhibit in order to carry on the ministry after He returned to Heaven. Those virtues are the Beatitudes and, in answer to my question, they describe how I am to live my life in honor to God. I am to be poor in spirit, mourn for the lost, be meek, hunger for righteousness, be merciful, be pure in heart, be a peacemaker, and rejoice in persecution. The Beatitudes represent our vertical relationship with our Abba Father. The fruit of the Spirit (love, joy, peace, patience, kindness, goodness, faithfulness, gentleness, and self-control) represents our horizontal relationships with others. REGIFTED GRACE combines, in order, the Beatitudes with the fruit to understand that the way we live our life in honor to God is to be reflected in how we caregive for others. And, in the process, God allows us to reside in His presence to live out an authentic faith, even in the gut-wrenching task of caregiving for someone with Alzheimer's.

Last Tuesday, I reassured the caregivers that God promises to never exclude them from His presence, that Jesus knew what it felt like to sacrifice, and that God promises to show mercy to those who show mercy to others.

My prayer immediately after Randall asked me to speak centered around this one point: "Lord, what do You need me to tell them?" I told them that, as a caregiver, God sees how we pour out abundant mercy and grace to our loved ones, He sees every one of our struggles, and He promises to stand with us as we labor in love. He loves us deeply and mourns with us as we grieve the process of losing someone to Alzheimer's. I told them God loves them deeply.

And, at the end, I told them this:
 

"Where is God in Alzheimer's? Look in the mirror. You are a reflection of God's love to those receiving your care. YOUR hands and YOUR feet are being used by God to show your loved ones His grace, mercy, and compassion."

Not only has God shown me an answer to where is He in Alzheimer's, He has shown me my calling, He has given to me the lifelong desire of my heart to write this amazing God-inspired book for caregivers, He has now actively returned me to my passion for speaking words of encouragement into others, and He has taught me how to demonstrate His love for mom through our caregiving of her.

As the above verse states, REGIFTED GRACE has now officially been "launched by God's grace and now safely home by God's grace." God's calling was made evident in Arkansas, and His ministry for REGIFTED GRACE was launched in Arkansas.

"Then I heard the voice of the Lord saying, 'Whom shall I send? And who will go for us?' And I said, 'Here am I. Send me!' " (Isaiah 6:8-NIV).  

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©2016 Regifted Grace Ministry LLC

Saturday, February 20, 2016

Being a Steward of God's Grace--Becoming a Better Person


 "Everything in the world is about to be wrapped up, so take nothing for granted. Stay wide-awake in prayer. Most of all, love each other as if your life depended on it. Love makes up for practically anything. Be quick to give a meal to the hungry, a bed to the homeless--cheerfully. Be generous with the different things God gave you, passing them around so all get in on it: if words, let it be God's words; if help, let it be God's hearty help. That way, God's bright presence will be evident in everything through Jesus, and he'll get all the credit as the One mighty in everything--encores to the end of time. Oh, yes!" 1 Peter 4:9-11 (MSG)

It's hard.

Yes, I said it. IT IS HARD living out a calling to provide care for someone you love. I believe that God is ever present and that His love is in abundance. I know I have hope and strength from leaning into Jesus. I claim victory in the power of a risen Savior. I have faith that God won't give me "more than I can handle."

But, IT IS HARD. Families become divided. Those who ought to help are the last to offer and the first to judge. Don't question my motivations. Don't judge my actions. Don't go around me to try to catch me in nonexistent lies. If you haven't asked about my endless and often silent tears, you have surrendered your right to participate in decisions of my life. If you haven't asked about my exhaustion and sleep deprivation and grieving as I witness the one who gave me life slowly drift further away from me a day at a time, don't expect the red carpet to be rolled out with your infrequent visits.

There. I said it. I read a plethora of stories daily about caregivers who feel abandoned, criticized, and forsaken by family members who ought to love, support, and encourage them. We daily live out 1 Peter by praying, loving, and caring for loved ones, generously bestowing our love and God's grace on them, even when they don't really know who we are.

Why the persecution?

I believe in 1 John 4:4 (MSG):  "My dear children, you come from God and belong to God. You have already won a big victory over those false teachers, for the Spirit in you is far stronger than anything in the world. These people belong to the Christ-denying world. They talk the world’s language and the world eats it up. But we come from God and belong to God. Anyone who knows God understands us and listens. The person who has nothing to do with God will, of course, not listen to us. This is another test for telling the Spirit of Truth from the spirit of deception."

Why the persecution?

Because they deny the disease. Or, because they deny Christ.

Or, because persecution is a disease of the soul. Persecutors deny Christ, convincingly talk the world's language, have nothing to do with or within God's will, and are repelled by the presence of Christ in us. It's like opposite ends of a magnet repelling each other.

Therefore, I am called to lay it down and let it go. I refuse to let my own chains tie me down more than the ones that someone else tries to level on me. And, I refuse to let anyone's chains separate me from the love of God. I am delivered. I come from God, and I belong to God. I offer myself as a living sacrifice, holy and pleasing to God.

And, I am better for it. I can step over the betrayals. I am healing, forgiving, and leaning into Jesus. I am learning compassion and sacrifice. I am being used by God Himself to nurture a loved one who is in great fear of the disease that robs priceless memories. I am called to regift God's grace to my life's best friend.

I am a better woman, daughter, wife, and mom for caregiving.

And, my friend Vince Zangaro wrote a song and produced a video (link below) because he is a better man. 

He and his wife Amy provide 24/7 care for his father who is in late stage Alzheimer's. Vince is an accomplished musician and wrote the song in the linked video below, called "A Better Man." Vince started the Alzheimers Music Fest in Georgia (see alzheimersmusicfest.org - currently under  construction). His blog is at iamcaregiver.com, and you can enjoy more of his music at zangaromusic.com.







©2016 Regifted Grace Ministry LLC

Sunday, December 6, 2015

Beatitudes Believer - Peacemaker: From Chaos to Christ . . . with love


“Don’t fret or worry. Instead of worrying, pray. Let petitions and praises shape your worries into prayers, letting God know your concerns. Before you know it, a sense of God’s wholeness, everything coming together for good, will come and settle you down. It’s wonderful what happens when Christ displaces worry at the center of your life.” Philippians 4:7 (MSG)



We don’t live in a world defined by peace.  Terrorists are attacking, five million Americans are battling Alzheimer’s, 113 people take their own life every 24 hours,[i] and divorce separates 50% of marriages.  That’s obviously only the tip of a very large, chaotic iceberg.

To be a peacemaker (the seventh virtue Jesus asked His disciples to possess), we need to understand that there is a difference between “peace with” and “peace in” and that we need to possess both kinds of peace.  

Peace WITH:  Having “peace with” involves our own internal struggles, both emotional and spiritual. We need to have peace with God, peace with ourselves, peace with our loved one who is receiving our care, and peace with the disease called dementia.  

Peace with God:

He knew me before I was born. He knew I would sin and fall short. He knew I could never attain “perfection” status on my own.  That’s why He sent Jesus to take on the punishment I deserved.  God takes imperfect sinners and gives them freedom from the chains holding them hostage from their pasts.  

Picture a buoy on a lake far from shore.  It is totally secured to the floor of the lake; it cannot move.  But, it can appear to move, depending where I am at in relationship to the buoy and how big the waves are.  The bigger the waves, the more it appears to move.  In reality, it is bobbing up and down, but it is not moving from its position in the lake.  If I’m closer to the buoy, I can see that it’s not moving; I’m the only one that can move.

God wants to be the buoy in our life, the peacemaker.  He doesn’t move away from me because He created me.  The more time we spend with Him, the closer we stay to Him because we can see that He is constant.  

Peace with Me:

What is your battle? My Achilles heel is the label of “failure.”  That label has been put on me by others, as well as myself. It has broken me many times, even recently by those who don’t understand the Alzheimer’s broken road.  However, no one has the right to don that label on me. I am not a failure before God, and I am not a failure to my parents, and I am not a failure to my husband and children.  I have a firm resolve to keep peace with myself and not to do any more battles with inappropriate labels, past failures, or sinful behaviors.

I am creating a beautiful handiwork out of the remnant pieces of my mom’s life because I’m choosing to be part of her life’s passage.  My only “failure” would be to ignore God’s calling to not let her suffer alone. I am far from perfection, but I am at peace with myself.  Failure?  Not me!

Peace with Loved One:

When I was about 8 years old, I overheard a discussion between my parents that negatively impacted my life until I was 45 years old.  It was my “root seed of abandonment” and held me hostage for most of my life. 

Both of my parents had one significantly older sibling who, for different reasons, garnered each of their family’s attention.  In addition, for my dad, he was probably no older than 10 years old when he walked home from school and found his house completely empty.  No parents, no furniture, no stuff. Literally.  His parents forgot to tell him that they were moving that day. I can only imagine a young child’s pain of abandonment of returning home to find his parents gone, along with all of his stuff.

Both of my parents were wounded when they were young.  When I was able to recognize that they could not give what they did not have, I understood at the age of 45 that we all live our lives with flawed memories and experiences.  

In other words, I had finally made peace with my parents, and they probably never knew I had a painful issue with them.  Dad passed away when I was 52.  I’m so grateful that I had a little time with him before Alzheimer's had more of him that I did.

Peace with Alzheimer’s Disease:

Because I have peace with God, peace with myself, and peace with my loved ones, I have no choice but to be at peace with the disease.  It is a disease.  I hate the disease.  I hate that five million Americans currently have it.  I hate that I might have a greater propensity for getting it because both parents have had it.

But, it allows me to become a better woman, a better daughter, a better wife, a better mother, a better friend.  I have great empathy for and can bring encouragement to those who are impacted by the disease.

Most importantly, it allows me to be a better child of God, learning every day how to relinquish more of myself to His will and His blessings for my life.


Peace IN:  Having “peace IN” involves the struggles or situations that pertain to others or which are external.  God does not promise us peace FROM the storm, but we can secure His peace IN the storm.


Once we have been able to make peace with God, ourselves, our loved one and the disease, and have been able to make peace in the midst of the turbulence of caregiving, we are equipped and called upon to be a peacemaker.  This Beatitude says we are blessed to be a peacemaker.  Going one step further, we are blessed to be a peacemaker to ourselves as well as for our loved ones.

Being a peacemaker for yourself means letting go of your own chaos, not creating additional tension in your life, and letting the chains of your past be loosed.  To survive and thrive as a caregiver, one of the “Golden Rules” is to never take your loved one’s actions personally. She doesn’t mean to cuss in church, he doesn’t mean to be difficult, she doesn’t try to make messes, he doesn’t mean to exhaust you by staying up all night, she doesn’t mean to tell you she hates you.  Allow all of the tender and loving moments to fill up your peace reserves to draw upon when the spewing of the disease flies out at you.  Mom has asked numerous times for me to forgive her for being difficult, not remembering things, or taking up my time.  

Sometimes, it feels like the Twilight Zone, where I don’t know which dimension of space and time she’s even living in.  She called in the early evening; whenever she does that, we know she will most likely be sundowning.  So, when the calls come in, I take a deep breath and ask God to help me.

So, once again, she called, I breathed, and I prayed.  I answered, “hi Mom!”  She said, “This is your mothe . . . . REALLY?  I am your mother?  You ARE my daughter?!?!?”  

“Yes, mom, this is your daughter, Cheryl.”

“Oh,” she exclaimed with a sigh.  “That makes me SO happy.  I’m so sorry I haven’t been remembering you.  I’m so happy to be your mom.”

My conundrum was this . . . did she only NOT remember at that moment that she couldn’t remember who I was and now suddenly COULD remember?  Or, did she really not remember me for the last few months when I called every night and we took her to church and Sunday School every Sunday?  That’s the sundowning Twilight Zone, the conundrum of not knowing if she does or does not know who I am.

What would a true peacemaker do?  A true peacemaker would just say it doesn’t matter.  As I tell mom to live in the moment (not the past or the future), I need to do the same.  It creates less chaos in my life and, in the great scheme of things, it truly doesn’t matter.  Here my mom was on the phone, with great joy, because she felt that she had just found her beloved baby girl.  That’s more than enough to bring my soul to a place of peace.

Being a peacemaker for your loved one is helping them to segregate themselves from the chaos.

Keep the level of overwhelm to a minimum. Tell them things or offer them instructions one step at a time.  Mom is close to no longer being able to do her laundry in assisted living.  She says she forgets which laundry area she uses, even when she writes it down, especially if something else comes up before the laundry is done.  She says if she puts the laundry in the wash, comes back to her room and writes down where it is, sits in her room until it’s done, goes back, puts it in the dryer, returns to her room, sits until it’s done, and then goes back to get the finished laundry, she’s just fine!  Wow, that’s a lot of steps, but she can seem to do it, and would like to do it, all by herself.  However, she said, if anything interrupts her, she just can’t remember anything about her laundry.  

As dementia progresses, there is great difficulty in abstract thinking and being able to perform familiar tasks.  Doing things methodically and one step at a time helps them to limit the chaos.  Being a peacemaker for them through our caregiving means helping them stay focused on only one thing at a time.  Our loved ones still would like to do things for themselves for as long as they can, and we can help them as long as we instruct them only one step at a time.

Being a peacemaker for them also means validating their fears.  It can be easy for me to just tell mom to not worry and that we have everything under control.  But, when I take the time to tell her that, yes, mom, it IS scary to be losing your memory, she feels validated and less afraid.

Mom was very confused when we took her to our home for Thanksgiving.  She just couldn’t remember where she lived and kept telling us she was so worried about not finding her way back, even though we kept telling her we would be driving her home.  She also kept saying that we’d be bringing her back “tomorrow.”  She had the “deer in the headlights” look again and was quite distraught.

Instead of telling her not to worry, I validated her, telling her that it’s scary to not remember things.  I told her to take my hand.  I led her to my computer room to show her my manuscript and this blog.  She delighted in seeing pictures of herself and dad on my blog, and she had tears in her eyes as I described the book I was writing and how I hoped it would help others through this journey.  We had a very tender moment between us, and her level of overwhelm greatly diminished.  I reminded her that she can always trust me to do right by her.  She expressed her gratitude for everything my husband and I have been doing for her.  While she still didn’t understand whether she was in Minnesota or in Arkansas, she did feel the peace instead of the chaos.

Find peace within yourself and share it every chance you get with your loved one, which will help both of you, and others involved in the family and in caregiving.  Our loved ones need us to be a peacemaker for them; they can no longer be it on their own.



©2015 Regifted Grace Ministry LLC


[i] Centers for Disease Control and Prevention (2013).